Duration: 49:07 Minutes
Unfortunately, this content is not available in the following territories: United Kingdom, Republic of Ireland
Jonny Kennedy, 36, lived with Dystrophic Epidermolysis Bullosa which left his body in agonising sores and fighting skin cancer.
This emotional documentary follows his last months as he succumbs to the terrible disease – but with a smile on his face.
Whether its choosing a coffin or moving home, Johnny approaches each day with humour and intelligence. Supporting him through his last months is his mother Edna who became his full-time carer.